Editor’s note: When Wes Hennings contributes to ABD, the topic usually revolves around Working for the Weekends and where you can take your kids for some fun and games. Today’s Dadventure is different. It’s a lifesaving trip he takes with his daughter.
You’re never prepared for your child to receive a devastating diagnosis. But it’s news we received before our daughter was even born. She would live her life facing Spinal Muscular Atrophy, a disease that until just a few years ago, was almost always deadly before the age of two.
While this is a terrible outcome of the genetic lottery, we were lucky enough to be connected with a world-class physician at St. Jude Children’s Research Hospital in Memphis, who started caring for our little girl before she was even born. Now, she’s two years old and beating the odds every day.
Since you’ve likely encountered one or a million promos for St. Jude over the holiday season, I thought you might like to see what it’s like from the inside; through the eyes of a family who has had their lives changed by this incredible place. It’s a Dadventure I never wanted to embark upon, but one I’m thankful for daily.
